ARTICLES AND RESOURCES
LeadingAge serves as a community partner and connector to solve problems and create new opportunities to better serve an aging America.
The Eden Alternative®
The Eden Alternative® is an international, non-profit 501(c)3 organization dedicated to creating quality of life for Elders and their care partners, wherever they may live.
A Bit of Brian's Brilliance
This is a blog where Brian LeBlanc, International Alzheimer’s Advocate speaks out about his journey with Alzheimer’s. “I have Alzheimer’s, BUT . . . it DOESN’T have me!
Alzheimer’s Music Fest
Vince Zangaro founded Alzheimer’s Music Fest to help others be able to care for their loved ones at home, after his 14-year Alzheimer’s journey with his father.
The Dementia Action Alliance USA
The Dementia Action Alliance USA is a non-profit national advocacy and education organization of people living with dementia, care partners, friends and dementia specialists committed to creating a better country in which to live with dementia.
Pioneer Network supports models where elders live in open, diverse, caring communities. Our aim is nothing less than transforming the culture of aging in America.
Books by G. Allen Power, MD:
Dementia Beyond Disease: Enhancing Well-Being
“From the internationally acclaimed author of the groundbreaking and award-winning book Dementia Beyond Drugs comes another eye-opening exploration of how to improve the lives of people with dementia and those who care for them. In this revised edition including updated facts, studies, and terminology Dr. G. Allen Power demonstrates how to achieve sustainable success in dementia care by changing the caregiving lens to focus on well-being and the ways in which it can be enhanced in people living with dementia.”
Dementia Beyond Drugs: Changing the Culture of Care
“An experienced geriatrician exposes why our current system of nursing homes and long-term care produces misery in our elders, particularly those with dementia, and foils the efforts of genuinely caring and compassionate staff to provide a better life for them. Through illuminating examples, see how a radically different approach to dementia care reduces the need for harmful psychotropic drugs and transforms how we engage the people living with this debilitating disease.”
Books by Atlanta Author and Geriatric Practitioner Nancy Kriseman:
Meaningful Connections: Positive Ways To Be Together When A Loved One Has Dementia
Meaningful Connections is Nancy’s newest book, which is designed to help caregivers find new ways to engagewith loved ones who have Alzheimer’s or other types of dementia. Suggestions, ideas, and case examples are presented throughout the book. The book includes chapters on how to have positive visits, how to engage with loved ones, as well as information on how to cope with difficult situations and end of life issues. Available locally from Tall Tales Books.
The Mindful Caregiver: Finding Ease in the Caregiving Journey
The Mindful Caregiver is Nancy’s second book, which teaches and inspires caregivers how to become “mindful caregivers.” Adhering to a mindfulness approach helps caregivers become intentional about how they provide care and take care of themselves. Caregivers will acquire new strategies for practicing self-care and learn how to attend to the spirit-side of caregiving. Published by Rowman and Littlefield, the book offers real time solutions caregivers can use in their everyday routines so they can feel more empowered and hopeful. Available locally from Tall Tales Books.
The Caring Spirit Approach to Eldercare: A Training Guide for Professionals and Families
The Caring Spirit approach to eldercare is a guidebook that provides professional and family caregivers with a unique perspective and approach to changing the culture of caring for elders. Available locally from Tall Tales Books.
Creating Moments of Joy – Jolene Brackey
Jolene Brackey has a vision. A vision that will soon look beyond the challenges of Alzheimer’s disease and focus more of our energy on creating moments of joy. When a person has short-term memory loss, her life is made up of moments. But if you think about it, our memory is made up of moments, too. Available locally from Tall Tales Books.
Learning to Speak Alzheimer’s – Joanne Koenig Coste
More than four million Americans suffer from Alzheimer’s, and as many as twenty million have close relatives or friends with the disease. Revolutionizing the way we perceive and live with Alzheimer’s, Joanne Koenig Coste offers a practical approach to the emotional well-being of both patients and caregivers that emphasizes relating to patients in their own reality. Available locally from Tall Tales Books.
Relentless Goodbye – Ginnie Horst Burkholder
Ginnie Horst Burkholder shares from the heart about caring for a spouse who is slowly slipping away to Lewy body dementia (LBD). Burkholder’s memoir reveals how she handles the constant challenges through humor, love, commitment, and faith. At the same time, she does not gloss over the loss, pain, and loneliness on this emotional roller coaster ride that invaded her marriage and family following her husband’s diagnosis. Available locally from Tall Tales Books.
Passages in Caregiving – Gail Sheehy
Sheehy identifies eight crucial stages of caregiving and offers insight for successfully navigating each one. With empathy and intelligence, backed by formidable research, and interspersed with poignant stories of her experience and that of other successful caregivers, Passages in Caregiving addresses the needs of this enormous and growing group. Available locally from Tall Tales Books.
Still Alice – Lisa Genova
In Lisa Genova’s extraordinary New York Times bestselling novel, an accomplished professor diagnosed with Alzheimer’s disease learns that her worth is comprised of more than her ability to remember. Now a major motion picture from Sony Pictures Classics starring Julianne Moore, Alec Baldwin, Kate Bosworth, and Kristen Stewart! Look for Lisa Genova’s next novel Inside the O’Briens. Available locally from Tall Tales Books.
Being Mortal – Atul Gawande
Medicine has triumphed in modern times, transforming birth, injury, and infectious disease from harrowing to manageable. But in the inevitable condition of aging and death, the goals of medicine seem too frequently to run counter to the interest of the human spirit. Nursing homes, preoccupied with safety, pin patients into railed beds and wheelchairs. Hospitals isolate the dying, checking for vital signs long after the goals of cure have become moot. Doctors, committed to extending life, continue to carry out devastating procedures that in the end extend suffering. Available locally from Tall Tales Books.
The Validation Breakthrough – Naomi Feil and Vicki de Klerk-Rubin
Validation is a practical way of communicating with and managing problem behavior in older adults with Alzheimer’s-type dementia. It helps reduce stress, enhance dignity, and increase happiness. Since its inception in 1989, Validation has helped thousands of professional and family caregivers improve their relationships with residents and loved ones with dementia. Caregivers who use these techniques validate older adults’ expressed feelings, rather than focusing on disorientation and confusion.
When Caring Takes Courage: Alzheimer’s/Dementia: At A Glance Guide for Family Caregivers – Mara Botonis
Top Tips for Common Care Challenges… From helping your loved one live well with Alzheimer’s/dementia to the secrets of capable caregiving, these easy to implement ideas give you a head start on creating the best possible day. When it comes to Alzheimer’s and dementia care, the only thing predictable about the experience is that it’s unpredictable. The more ideas and approaches you have, the better your chances are you’ll find something that works well for you. Available locally from Tall Tales Books.
Tangles: A Story about Alzheimer’s, My Mother and Me – Sarah Leavitt
What do you do when your outspoken, passionate and quick-witted mother starts fading into a forgetful, fearful woman? In this powerful graphic memoir, Sarah Leavitt reveals how Alzheimer’s disease transformed her mother Midge – and her family – forever. In spare black and white drawings and clear, candid prose, Sarah shares her family’s journey through a harrowing range of emotions – shock, denial, hope, anger, frustration – all the while learning to cope, and managing to find moments of happiness. Available locally from Tall Tales Books.
Alzheimer’s From The Inside Out – Richard Taylor
Offers a glimpse into the world of individuals living with Alzheimer’s disease. The author, who was diagnosed at age 58, shares his account of his slow transformation and deterioration. Addresses complexity and emotions surrounding issues such as the loss of independence, unwanted personality shifts, struggle to communicate, and more. Available locally from Tall Tales Books.
Dementia Spotlight Foundation supports local businesses.
Thanks to Caring Together in Hope for recommending many of the books on our resource page!