Resources

Welcome To Our

Dementia Care Resource Guide

Welcome to our dementia education and care resource page! We understand that a dementia diagnosis can be overwhelming, but we are here to empower you with knowledge and guides to help you navigate this journey.

Our carefully crafted and curated resources aim to provide education, tips, and advice on living a bright life with dementia.

Have a question or need additional help?

Resourceful mature woman sitting on floor and using laptop

Dementia Care Glossary

ADS provide a supervised community setting for older adults with dementia or other health conditions that prevent them from being home alone safely during the day. There are three types of adult day programs: 1) Adult social day care provides planned social interactions, exercise, and other activities appropriate for the person’s condition(s) and capabilities. 2) Adult day health care provides social activities and some health and therapeutic services, such as physical or occupational therapy. 3) Specialized adult day care is designed for adults with Alzheimer’s, other forms of dementia, and developmental disabilities. Go to the National Association of Area Agencies on Aging at www.usaging.org to find groups in your area. 

Georgia –  www.aging.georgia.gov         Floridawww.elderaffairs.org

Formerly known as geriatric care management is a holistic, client-centered approach to caring for older adults or others facing ongoing health challenges. These professionals have varied educational and professional backgrounds with a specialized focus on issues associated with aging and disabilities. Go to www.aginglifecare.org to find someone in your area.

A comprehensive set of physical and/or cognitive assessments to evaluate an individual’s ability to safely operate a motor vehicle. They are performed by a Certified Driving Rehabilitation Specialist (CDRS). To find a specialist in your area, go to the American Occupational Therapy Association website, 

www.myaota.aota.org.

A term coined to cover an area of legal practice that emphasizes those issues that affect the growing aging population. Elder law attorneys understand these issues and the laws around them. They handle various legal matters affecting an older or disabled person related to health care, long-term care planning, guardianship, retirement, Social Security, Medicare/Medicaid, estate planning, etc. Go to the National Academy of Elder Law Attorneys at www.naela.org to find a specialist in this field of law.

These agencies provide one or more service categories in a client’s home: companion/sitting, personal care, light housekeeping, and meal preparation. Home care staff typically spend 4-24 hours in the house, but this varies by agency. These services are provided by certified nursing assistants (CNAs).

This service provides short-term, intermittent (not daily) skilled healthcare services to patients in their homes (or communities), typically for up to 60 days and often following a hospital or rehab discharge. The health-related services provided may include: assistance with medications, wound care, intravenous (IV) therapy, and help with basic activities of daily living (ADLs) such as bathing, dressing, and mobility. Skilled nursing is provided by RNs or LPNs; physical, occupational, and speech therapy are provided by licensed therapists. A physician’s order is required for all services.

A home safety evaluation thoroughly assesses potential hazards in and around your home. Potential risks include anything that could cause personal injury, lead to a fire or flooding in your home, or jeopardize your safety by making it easy for an intruder to enter your home. This can be an essential preventative tool, especially for families caring for a loved one with dementia. A licensed healthcare professional, such as an occupational therapist, provides the assessment. 

Independent living is a brand term that encompasses senior apartments, active senior communities, and retirement homes. These types of buildings are age-restricted (55 and over, 65 and over) and are not licensed to provide personal for or nursing services.  

Various housing options are available for older adults needing assistance or direct care. Assisted Living Communities (ALCs) and Personal Care Homes (PCHs) provide 24-hour-a-day services to residents needing help with personal care, medication management, and home management but do not require skilled healthcare. PCHs range in size from 2 beds in private homes to 100+ apartments. ALCs must have at least 25 apartments. The services are similar, but eligibility requirements and payment options differ. 

Continuing Care Retirement Communities (CCRCs) provide 3 levels of accommodations: independent living, personal care/assisted living, and skilled nursing /rehab. Services vary by level of need. Most CCRCs require new residents to pay a one-time entrance fee before admission. Entrance fee refund policies vary. All CCRCs require payment of monthly or daily service fees.

Skilled Nursing Centers (SNCs) offer two levels of care: long-term care and short-term rehab. Residents must require skilled services from licensed professionals such as physicians, nurses (RNs and LPNs), and therapists. These services include injections, catheterizations, dressing changes, and tube feedings.

A comprehensive approach to treating serious illness that focuses on the patient’s physical, psychological, and spiritual needs. Its goal is to achieve the best quality of life available to the patient by relieving suffering, controlling pain and symptoms, and enabling them to achieve their maximum functional capacity. Respect for the patient’s culture, beliefs, and values is essential. It can be provided at home or in a residential community like a hospice.

This refers to short-term, temporary care provided to people with disabilities so that their families can take a break from the daily routine of caregiving. These services may involve overnight care for an extended period of time. Respite services are provided in many ways depending on the provider, the needs of the family, and available funds.  Respite may be provided in the home or in an assisted living community.

These agencies work with seniors and family members to help determine what type of care is needed and what types of housing are available. A coordinator will assess your situation, recommend the best type of community, and provide a tour of each recommended one. After deciding, they will also help with financial questions to offer the most affordable living possible.

National Resources

Organized by African American health professionals to build resources and awareness around dementia in African Americans and faith communities.

alterminiteries.com 

BenefitsCheckUp® connects millions of older adults and people with disabilities with benefits programs that can help pay for health care, medicine, food, utilities, and more.

benefitscheckup.org

The Dementia-Friendly Airports Working Group (DFAWG) is an international collaboration of professionals, academics, and volunteers in aging and dementia services and support systems, including present and former dementia care partners, and individuals who are living with dementia. DFAWG was formed in September 2018 after learning about Brisbane Airport’s dementia-friendly airport designation.

 

Contact: 
​Sara Barsel, Ph.D. c/o DementiaFriendlyAirports@gmail.com

Website:

www.dementiafriendlyairports.com

A guide on home safety for older adults, with a printable checklist to help assess your home for risks.

https://www.ncoa.org/adviser/medical-alert-systems/home-safety-older-adults/

1-(800) 222-2225            

www.nia.nih.gov

(571) 527-3900                      

www.benefitscheckup.org

1-(800) 633-4227

www.medicare.gov

1-(800) 877-2323            

www.medicaid.gov

1-(800) 827-1000      

www.benefits.va.gov/benefits

National Associations

www.seniordriving.aaa.com

1-(800) 272-3900     

www.alz.org

(919)-490-5577            

www.respitelocator.org

1-(800)-829-2734          

www.caregiver.com

(503) 228-4415                              

www.deathwithdignity.org

(202) 872-0888                   

www.dfamerica.org

1-(800) 445-8106            

www.caregiver.org

(202) 546-4759                    

www.hospice.nahc.org

 (202) 454-3970                      

www.caregiveraction.org

Georgia Resources

(404) 657-9915                     

www.atlanta.egalaid.org

(404) 463-3100            

www.atlantaregional.com

(404) 463-3333     

www.empowerline.org

1-(877) 924-6073        

www.ghpco.org

(404) 206-5175           

www.glsp.org

1-800 869-1150            

www.medicaid.georgia.gov

Atlanta Metro Resources

The Alzheimer’s Store (Assistive Technology)              

1-(800)-752-3238 

www.alzstore.com

 

Tools for Life (Georgia Tech)   

www.cidi.gatech.edu/toolsforlife    

Sal Kibler – sal.kibler@gatech.edu

Freedom and Mobility 

1255 Kennestone Circle, Ste. Marietta, GA 30066

(770) 514-9957

www.freedomandmobility.com

Campen Estate Planning – Daniel Campen

401 Westpark Ct., Ste. 200, Peachtree City, GA 30269

(678) 340-3223

www.campenestateplanning.com

Georgia Estate & Elder Law (Park Ridge Office Park)Chris Brannon and Kelly Napier

2900 Chamblee Tucker Road. Bldg. 14, Ste. 100, Atlanta, GA 30341

(770) 854-0688

www.georgia-elderlaw.com

Nadler Biernath: Special Needs and Elder LawHeather Nadler

6801 Governors Lake Pkwy Ste. 140, Peachtree Corners, GA 30071

(770) 455-0535

www.elderlawanswers.com

Nelson Elder Care LawCindy Nelson

2230 Towne Lake Pwy. Bldg. 1200, Ste.120, Woodstock, GA 30189    

(678) 250-9355

www.nelsoneldercarelaw.com 

Nelson Elder Care LawJosh Nelson

2414 Dallas Hwy SW, Marietta, GA 30064

(678) 904-0373

www.nelsoneldercarelaw.com 

Law Office of Donald HoraceDonald Horace

160 Clairmont Ave, Ste.200, Decatur, GA 30030

(404) 855-5285

donaldhorace@hotmail.com

Law Office of Paul BlackPaul Black

2002 Summit Blvd. NE Ste. 300, Atlanta, GA 30319

(404) 410-6820 

paul@georgia-estatelaw.com

 

Hurley Elder Care Law – Miles Patrick Hurley

2727 Paces Ferry Rd SE Bldg. 1, Suite 100, Atlanta, GA 30339

(404) 843-0121

www.hurleyeclaw.com

Care Patrol Senior Care AdvisorsVictoria Archable 

(404) 583-1231

www.carepatrol.com

Senior Living Specialists of GA – Stacy Stafford   

(404) 594-4543

www.seniorlivingspecialistsga.com

Florida Resources

LaBella LegacyJanice Lindmar          

2051 Little Road, Trinity, Fl 34655              

(727) 215-5348

www.labellalegacy.com

 

Jaime’s Adult Day CenterJaime Goddard-Stern  

18950 N Dale Mabary Ave, Lutz, FL 33548

(813) 263-6735

jaimesadc@yahoo.com

Path FindersRenee Brunelle 

885-687-7284

www.pathfindersdownsizing.com

 

Seniors Moving ForwardRita Rodriguez

813-748-5562

rita@seniorsmovingforward.net

Mortellaro LawMichaelangeleo Mortellaro   

6911 Pistol Range Rd, #101B, Tampa, FL 33635

(813) 807-4511

www.mortellarolaw.com

 

Stephanie Schneider, PA – Stephanie Schneider     

1776 N. Pine Island Rd, Ste. 224, Plantation, Fl 33322    

954-382-1997

www.fl.elderlaw.com

Davis Family HearingJoanie Davis 

13101 Spring Hill Dr, Spring Hill FL 34609

(352) 666-8911

www.davisfamilyhearing.com

 

Hearing Center of TampaAmy Charrier 

15310 Amberly Dr, Ste 170, Tampa, FL 33464          

(813) 374-3036

www.floridahearing.com

C.S.I.Laura Frazier   

1502 N. Fletcher Ave, Ste.113, Tampa, FL 33612          

(813) 342-5060

www.caregiver.com

 

Griswold Home CareArthur Mosely              

1845 Collier Parkway, Lutz, FL 33549

(813) 755-3442

www.griswoldhomecare.com

 

Right at HomeChristine Blum 

5327 Commercial Way B105, Spring Hill, FL 34607

(352) 694-1087

www.naturecoasthomecare.com

Empath HealthTrudy Beeler     

5771 Roosevelt Blvd, Clearwater, FL 33760

(727) 643-4673

www.suncoasthospice.org

 

Gulfside Healthcare ServicesLynda Woodring  

6230 Lafayette St., New Port Richey, FL 34652

(727) 845-5707

www.gulf side.org

 

HPH HospiceValerie C

12107 Majestic Blvd, Hudson, FL 34667

(353) 585-7893

USF HealthAmanda Smith 

4001 E. Fletcher Ave.Tampa, FL 33613

(813) 974-4355

www.health.usf.edu/medica

 

Alan Spiegle 

31608 US Hwy 19 N, Palm Harbor, FL 34684

(727) 787-7077

www.neurologicalsolutions.com

Senior Home TransitionsFrank Pascoe       

1801 Highland Club Ln., Palm Harbor, FL 34684

(727) 215-5348

frank@seniorhometransitions.com

 

Compassionate Care ConnectionKatie Levinson 

8241 May Port Ct., Land O Lakes, FL 34638          

(813) 285-0058

klevinson@ccconection.net

 

Seniors in ServiceConnie Brown

1306 W. Sligh Ave, Tampa, FL 33604

(813) 537-3521

www.seniorservice.org

Additional Resources

Check list with blue marked points and marker on blue background

Check Out Out

Care Partner Checklists

Helpful Websites

LeadingAge

LeadingAge serves as a community partner and connector to solve problems and create new opportunities to better serve an aging America.

The Eden Alternative®

The Eden Alternative® is an international, non-profit 501(c)3 organization dedicated to creating quality of life for Elders and their care partners, wherever they may live.

Teepa Snow

Teepa Snow is one of the leading educators on dementia and the care that accompanies it, in the US and Canada.

The Dementia Action Alliance USA

The Dementia Action Alliance USA is a non-profit national advocacy and education organization of people living with dementia, care partners, friends and dementia specialists committed to creating a better country in which to live with dementia.

Pioneer Network

Pioneer Network supports models where elders live in open, diverse, caring communities. Our aim is nothing less than transforming the culture of aging in America.

G. Allen Power, MD

G. Allen Power, MD is a board certified internist and geriatrician, and newly named Schlegel Chair in Aging and Dementia Innovation at the Schlegel—U. Waterloo Research Institute for Aging in Ontario, Canada.

Being in the Moment

Being in the Moment is a FREE resource for family and friends of persons living with dementia. You will find answers, tips, ideas, knowledge, suggestions and coping mechanisms to get you from morning to night and everything in between.  

Wiser Now, Inc.

Nature is nurturing and features prominently in much of what Wiser Now publishes and promotes. And the whole of this website is meant to nurture whoever visits. It’s a safe and welcoming place to delight in the individuality of one another.

Naborforce

Naborforce is a new service that is bridging the gap between full independence and “home/companion care” by providing light support for older adults who just need a friendly hand from time to time. You are connected to a network of “Nabors” that can provide social engagement and on-demand support for errands, transportation and help around the home.

Senior Chinese Couple Sitting on Front Steps of Their House

Alzheimer's Friendly Housing

If you are caring for a loved one with Alzheimer’s disease or dementia, you can make certain home improvements to help your loved one feel more comfortable and safe at home. 

Managing Alzheimer’s and Dementia Behaviors
The primary purpose of this Health Care Edition of Managing Alzheimer’s and Dementia Behavior is to assist both “Healthcare Professionals” and “Family Caregivers” alike in providing the best care possible to those living with Alzheimer’s and other dementia-related diseases.

Learn More

 

 

 

 

Staying Afloat in a Sea of Forgetfulness: Common Sense Caregiving Expanded Edition
When my father was first diagnosed with Alzheimer’s, I read everything I could get my hands on about the disease. Right off the bat I could tell if it was written by a physician, pharmaceutical company or even a nursing home. When caregivers are looking for help, the last thing they need is medical text so complex they already forgot what they read by the time it’s laid back down. This is what got me started on writing about common sense caregiving, which turned into a weekly column and now into this book. My goal is to make this book as “caregiver friendly” as possible. Sharing my triumphs and hardships from my plus three-thousand day campaign in dealing with the disease of Alzheimer’s and the world of memory-impairment.

Learn More

 

The Aftereffects of Caregiving
Throughout the many years that you, as a caregiver attend to the countless needs of your loved one, or ones, you will lose fragments of your life that may take years to recover. You may come crawling out of your caregiving campaign wondering if there’s any of the original “You” left. Is this you? Are you feeling a little lost, fragile, maybe hesitant to move forward in life? This book was written specifically for you! We want to help you find yourself again or at least show you ways to reinvent yourself. We know from personal experience that the aftereffects of caregiving can be catastrophic. Our intent in writing this book is to help you open your front door and step back into the world. There is life still out there waiting for you.

Learn More

Dementia Beyond Disease: Enhancing Well-Being
“From the internationally acclaimed author of the groundbreaking and award-winning book Dementia Beyond Drugs comes another eye-opening exploration of how to improve the lives of people with dementia and those who care for them. In this revised edition including updated facts, studies, and terminology Dr. G. Allen Power demonstrates how to achieve sustainable success in dementia care by changing the caregiving lens to focus on well-being and the ways in which it can be enhanced in people living with dementia.”

Learn More

 

 

 

 

Dementia Beyond Drugs: Changing the Culture of Care
“An experienced geriatrician exposes why our current system of nursing homes and long-term care produces misery in our elders, particularly those with dementia, and foils the efforts of genuinely caring and compassionate staff to provide a better life for them. Through illuminating examples, see how a radically different approach to dementia care reduces the need for harmful psychotropic drugs and transforms how we engage the people living with this debilitating disease.”

Learn More

Meaningful Connections: Positive Ways To Be Together When A Loved One Has Dementia
Meaningful Connections is Nancy’s newest book, which is designed to help caregivers find new ways to engagewith loved ones who have Alzheimer’s or other types of dementia. Suggestions, ideas, and case examples are presented throughout the book. The book includes chapters on how to have positive visits, how to engage with loved ones, as well as information on how to cope with difficult situations and end of life issues. Available locally from Tall Tales Books.

Learn More

Dementia from the Inside: A Doctor’s Personal Journey of Hope
Dr. Jennifer Bute was a highly qualified senior doctor in a large clinical practice, whose patients included those with dementia. Then she began to notice symptoms in herself. She was finally given a diagnosis of Young Onset Dementia in 2009. Jennifer believes that her dementia is an opportunity as well as a challenge. When she resigned as a General Practitioner, she resolved to explore what could be done to slow the progress of dementia, and to help people living with it. Inspired by the work of neuroscientist Professor Kawashima that showed significant cognitive recovery in patients with dementia, she adopted the principles of his approach and has produced materials for the ‘Japanese Memory Groups’ that she runs in the dementia inclusive village where she now lives.

Learn More

 

 

The Long Hello: Memory, My Mother, and Me
Since Cathie Borrie delivered her keynote performance at the World Alzheimer’s Day event sponsored by the Community and Access Programs of the Museum of Modern Art, her self-published manuscript has won rapturous praise from noted writers and Alzheimer’s experts alike, from Maya Angelou, Lisa Genova, and Molly Peacock to Dr. Bill Thomas, Jed A. Levine of the Alzheimer’s Association, NYC, and Meryl Comer of the Geoffrey Beene Foundation Alzheimer’s Initiative. Now it is available to the general public for the first time in a trade edition.

Learn More

 

 

 

You Might be a Caregiver if: You Give yourself to Others then Wonder what Happened to YOU!
Caregivers, perhaps the strongest of personality types, derive much of their personal satisfaction through pleasing Others. As a result, they often lose perspective on how to please themselves! This book will help these amazing individuals to learn about themselves through increased Awareness and Acceptance of who and what they are; and more importantly why they do what they do!

Learn More

 

 

 

 

 

The Lewy Body Soldier
They do say the hardest line to write in a book is the first, in my case it will be the last, as eight years ago i was told i had the Alzheimer’s Type of dementia, only to be told, four years later i had been misdiagnosed, and it wasnt Alzheimer’s, But the Lewy Bodys type dermentia, please read to see WHAT HAPPENED NEXT

Learn More

 

 

 

 

Creating Moments of Joy – Jolene Brackey
Jolene Brackey has a vision. A vision that will soon look beyond the challenges of Alzheimer’s disease and focus more of our energy on creating moments of joy. When a person has short-term memory loss, her life is made up of moments. But if you think about it, our memory is made up of moments, too. Available locally from Tall Tales Books.

Learn More

 

 

 

 

Learning to Speak Alzheimer’s – Joanne Koenig Coste
More than four million Americans suffer from Alzheimer’s, and as many as twenty million have close relatives or friends with the disease. Revolutionizing the way we perceive and live with Alzheimer’s, Joanne Koenig Coste offers a practical approach to the emotional well-being of both patients and caregivers that emphasizes relating to patients in their own reality. Available locally from Tall Tales Books.

Learn More

 

 

 

 

The Validation Breakthrough – Naomi Feil and Vicki de Klerk-Rubin
Validation is a practical way of communicating with and managing problem behavior in older adults with Alzheimer’s-type dementia. It helps reduce stress, enhance dignity, and increase happiness. Since its inception in 1989, Validation has helped thousands of professional and family caregivers improve their relationships with residents and loved ones with dementia. Caregivers who use these techniques validate older adults’ expressed feelings, rather than focusing on disorientation and confusion.

Learn More

 

 

 

When Caring Takes Courage: Alzheimer’s/Dementia: At A Glance Guide for Family Caregivers – Mara Botonis
Top Tips for Common Care Challenges… From helping your loved one live well with Alzheimer’s/dementia to the secrets of capable caregiving, these easy to implement ideas give you a head start on creating the best possible day. When it comes to Alzheimer’s and dementia care, the only thing predictable about the experience is that it’s unpredictable. The more ideas and approaches you have, the better your chances are you’ll find something that works well for you. Available locally from Tall Tales Books.

Learn More

 

Relentless Goodbye – Ginnie Horst Burkholder
Ginnie Horst Burkholder shares from the heart about caring for a spouse who is slowly slipping away to Lewy body dementia (LBD). Burkholder’s memoir reveals how she handles the constant challenges through humor, love, commitment, and faith. At the same time, she does not gloss over the loss, pain, and loneliness on this emotional roller coaster ride that invaded her marriage and family following her husband’s diagnosis. Available locally from Tall Tales Books.

Learn More

 

 

 

 

Alzheimer’s From The Inside Out – Richard Taylor
Offers a glimpse into the world of individuals living with Alzheimer’s disease. The author, who was diagnosed at age 58, shares his account of his slow transformation and deterioration. Addresses complexity and emotions surrounding issues such as the loss of independence, unwanted personality shifts, struggle to communicate, and more. Available locally from Tall Tales Books.

Learn More

Managing Alzheimer’s and Dementia Behaviors
The primary purpose of this Health Care Edition of Managing Alzheimer’s and Dementia Behavior is to assist both “Healthcare Professionals” and “Family Caregivers” alike in providing the best care possible to those living with Alzheimer’s and other dementia-related diseases.

Learn More

 

Staying Afloat in a Sea of Forgetfulness: Common Sense Caregiving Expanded Edition
When my father was first diagnosed with Alzheimer’s, I read everything I could get my hands on about the disease. Right off the bat I could tell if it was written by a physician, pharmaceutical company or even a nursing home. When caregivers are looking for help, the last thing they need is medical text so complex they already forgot what they read by the time it’s laid back down. This is what got me started on writing about common sense caregiving, which turned into a weekly column and now into this book. My goal is to make this book as “caregiver friendly” as possible. Sharing my triumphs and hardships from my plus three-thousand day campaign in dealing with the disease of Alzheimer’s and the world of memory-impairment.

Learn More

 

The Aftereffects of Caregiving
Throughout the many years that you, as a caregiver attend to the countless needs of your loved one, or ones, you will lose fragments of your life that may take years to recover. You may come crawling out of your caregiving campaign wondering if there’s any of the original “You” left. Is this you? Are you feeling a little lost, fragile, maybe hesitant to move forward in life? This book was written specifically for you! We want to help you find yourself again or at least show you ways to reinvent yourself. We know from personal experience that the aftereffects of caregiving can be catastrophic. Our intent in writing this book is to help you open your front door and step back into the world. There is life still out there waiting for you.

Learn More

Dementia Beyond Disease: Enhancing Well-Being
“From the internationally acclaimed author of the groundbreaking and award-winning book Dementia Beyond Drugs comes another eye-opening exploration of how to improve the lives of people with dementia and those who care for them. In this revised edition including updated facts, studies, and terminology Dr. G. Allen Power demonstrates how to achieve sustainable success in dementia care by changing the caregiving lens to focus on well-being and the ways in which it can be enhanced in people living with dementia.”

Learn More

 

Dementia Beyond Drugs: Changing the Culture of Care
“An experienced geriatrician exposes why our current system of nursing homes and long-term care produces misery in our elders, particularly those with dementia, and foils the efforts of genuinely caring and compassionate staff to provide a better life for them. Through illuminating examples, see how a radically different approach to dementia care reduces the need for harmful psychotropic drugs and transforms how we engage the people living with this debilitating disease.”

Learn More

Meaningful Connections: Positive Ways To Be Together When A Loved One Has Dementia
Meaningful Connections is Nancy’s newest book, which is designed to help caregivers find new ways to engagewith loved ones who have Alzheimer’s or other types of dementia. Suggestions, ideas, and case examples are presented throughout the book. The book includes chapters on how to have positive visits, how to engage with loved ones, as well as information on how to cope with difficult situations and end of life issues. Available locally from Tall Tales Books.

Learn More

Dementia from the Inside: A Doctor’s Personal Journey of Hope
Dr. Jennifer Bute was a highly qualified senior doctor in a large clinical practice, whose patients included those with dementia. Then she began to notice symptoms in herself. She was finally given a diagnosis of Young Onset Dementia in 2009. Jennifer believes that her dementia is an opportunity as well as a challenge. When she resigned as a General Practitioner, she resolved to explore what could be done to slow the progress of dementia, and to help people living with it. Inspired by the work of neuroscientist Professor Kawashima that showed significant cognitive recovery in patients with dementia, she adopted the principles of his approach and has produced materials for the ‘Japanese Memory Groups’ that she runs in the dementia inclusive village where she now lives.

Learn More

 

The Long Hello: Memory, My Mother, and Me
Since Cathie Borrie delivered her keynote performance at the World Alzheimer’s Day event sponsored by the Community and Access Programs of the Museum of Modern Art, her self-published manuscript has won rapturous praise from noted writers and Alzheimer’s experts alike, from Maya Angelou, Lisa Genova, and Molly Peacock to Dr. Bill Thomas, Jed A. Levine of the Alzheimer’s Association, NYC, and Meryl Comer of the Geoffrey Beene Foundation Alzheimer’s Initiative. Now it is available to the general public for the first time in a trade edition.

Learn More

 

You Might be a Caregiver if: You Give yourself to Others then Wonder what Happened to YOU!
Caregivers, perhaps the strongest of personality types, derive much of their personal satisfaction through pleasing Others. As a result, they often lose perspective on how to please themselves! This book will help these amazing individuals to learn about themselves through increased Awareness and Acceptance of who and what they are; and more importantly why they do what they do!

Learn More

 

The Lewy Body Soldier
They do say the hardest line to write in a book is the first, in my case it will be the last, as eight years ago i was told i had the Alzheimer’s Type of dementia, only to be told, four years later i had been misdiagnosed, and it wasnt Alzheimer’s, But the Lewy Bodys type dermentia, please read to see WHAT HAPPENED NEXT

Learn More

 

Creating Moments of Joy – Jolene Brackey
Jolene Brackey has a vision. A vision that will soon look beyond the challenges of Alzheimer’s disease and focus more of our energy on creating moments of joy. When a person has short-term memory loss, her life is made up of moments. But if you think about it, our memory is made up of moments, too. Available locally from Tall Tales Books.

Learn More

 

Learning to Speak Alzheimer’s – Joanne Koenig Coste
More than four million Americans suffer from Alzheimer’s, and as many as twenty million have close relatives or friends with the disease. Revolutionizing the way we perceive and live with Alzheimer’s, Joanne Koenig Coste offers a practical approach to the emotional well-being of both patients and caregivers that emphasizes relating to patients in their own reality. Available locally from Tall Tales Books.

Learn More

 

The Validation Breakthrough – Naomi Feil and Vicki de Klerk-Rubin
Validation is a practical way of communicating with and managing problem behavior in older adults with Alzheimer’s-type dementia. It helps reduce stress, enhance dignity, and increase happiness. Since its inception in 1989, Validation has helped thousands of professional and family caregivers improve their relationships with residents and loved ones with dementia. Caregivers who use these techniques validate older adults’ expressed feelings, rather than focusing on disorientation and confusion.

Learn More

 

When Caring Takes Courage: Alzheimer’s/Dementia: At A Glance Guide for Family Caregivers – Mara Botonis
Top Tips for Common Care Challenges… From helping your loved one live well with Alzheimer’s/dementia to the secrets of capable caregiving, these easy to implement ideas give you a head start on creating the best possible day. When it comes to Alzheimer’s and dementia care, the only thing predictable about the experience is that it’s unpredictable. The more ideas and approaches you have, the better your chances are you’ll find something that works well for you. Available locally from Tall Tales Books.

Learn More

 

Relentless Goodbye – Ginnie Horst Burkholder
Ginnie Horst Burkholder shares from the heart about caring for a spouse who is slowly slipping away to Lewy body dementia (LBD). Burkholder’s memoir reveals how she handles the constant challenges through humor, love, commitment, and faith. At the same time, she does not gloss over the loss, pain, and loneliness on this emotional roller coaster ride that invaded her marriage and family following her husband’s diagnosis. Available locally from Tall Tales Books.

Learn More

 

Alzheimer’s From The Inside Out – Richard Taylor
Offers a glimpse into the world of individuals living with Alzheimer’s disease. The author, who was diagnosed at age 58, shares his account of his slow transformation and deterioration. Addresses complexity and emotions surrounding issues such as the loss of independence, unwanted personality shifts, struggle to communicate, and more. Available locally from Tall Tales Books.

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