ARTICLES AND RESOURCES

Helpful Websites:

LeadingAge

LeadingAge serves as a community partner and connector to solve problems and create new opportunities to better serve an aging America.

The Eden Alternative®

The Eden Alternative® is an international, non-profit 501(c)3 organization dedicated to creating quality of life for Elders and their care partners, wherever they may live.

The Laona M. Kitchen Foundation

The Laona M. Kitchen Foundation was founded to honor mother, grandmother, and great grandmother Laona Kitchen, who battled Alzheimer’s disease.

A Bit of Brian's Brilliance

This is a blog where Brian LeBlanc, International Alzheimer’s Advocate speaks out about his journey with Alzheimer’s. “I have Alzheimer’s, BUT . . . it DOESN’T have me!

Alzheimer’s Music Fest

Vince Zangaro founded Alzheimer’s Music Fest to help others be able to care for their loved ones at home, after his 14-year Alzheimer’s journey with his father.

Teepa Snow

Teepa Snow is one of the leading educators on dementia and the care that accompanies it, in the US and Canada.

The Dementia Action Alliance USA

The Dementia Action Alliance USA is a non-profit national advocacy and education organization of people living with dementia, care partners, friends and dementia specialists committed to creating a better country in which to live with dementia.

Pioneer Network

Pioneer Network supports models where elders live in open, diverse, caring communities. Our aim is nothing less than transforming the culture of aging in America.

G. Allen Power, MD

G. Allen Power, MD is a board certified internist and geriatrician, and newly named Schlegel Chair in Aging and Dementia Innovation at the Schlegel—U. Waterloo Research Institute for Aging in Ontario, Canada.

Books:

Books by Gary Joseph LeBlanc:

Managing Alzheimer’s and Dementia Behaviors
The primary purpose of this Health Care Edition of Managing Alzheimer’s and Dementia Behavior is to assist both “Healthcare Professionals” and “Family Caregivers” alike in providing the best care possible to those living with Alzheimer’s and other dementia-related diseases.

Staying Afloat in a Sea of Forgetfulness: Common Sense Caregiving Expanded Edition
When my father was first diagnosed with Alzheimer’s, I read everything I could get my hands on about the disease. Right off the bat I could tell if it was written by a physician, pharmaceutical company or even a nursing home. When caregivers are looking for help, the last thing they need is medical text so complex they already forgot what they read by the time it’s laid back down. This is what got me started on writing about common sense caregiving, which turned into a weekly column and now into this book. My goal is to make this book as “caregiver friendly” as possible. Sharing my triumphs and hardships from my plus three-thousand day campaign in dealing with the disease of Alzheimer’s and the world of memory-impairment.

The Aftereffects of Caregiving
Throughout the many years that you, as a caregiver attend to the countless needs of your loved one, or ones, you will lose fragments of your life that may take years to recover. You may come crawling out of your caregiving campaign wondering if there’s any of the original “You” left. Is this you? Are you feeling a little lost, fragile, maybe hesitant to move forward in life? This book was written specifically for you! We want to help you find yourself again or at least show you ways to reinvent yourself. We know from personal experience that the aftereffects of caregiving can be catastrophic. Our intent in writing this book is to help you open your front door and step back into the world. There is life still out there waiting for you.

Books by G. Allen Power, MD:

Dementia Beyond Disease: Enhancing Well-Being
“From the internationally acclaimed author of the groundbreaking and award-winning book Dementia Beyond Drugs comes another eye-opening exploration of how to improve the lives of people with dementia and those who care for them. In this revised edition including updated facts, studies, and terminology Dr. G. Allen Power demonstrates how to achieve sustainable success in dementia care by changing the caregiving lens to focus on well-being and the ways in which it can be enhanced in people living with dementia.”

Dementia Beyond Drugs: Changing the Culture of Care
“An experienced geriatrician exposes why our current system of nursing homes and long-term care produces misery in our elders, particularly those with dementia, and foils the efforts of genuinely caring and compassionate staff to provide a better life for them. Through illuminating examples, see how a radically different approach to dementia care reduces the need for harmful psychotropic drugs and transforms how we engage the people living with this debilitating disease.”

Books by Atlanta Author and Geriatric Practitioner Nancy Kriseman:

Meaningful Connections: Positive Ways To Be Together When A Loved One Has Dementia
Meaningful Connections is Nancy’s newest book, which is designed to help caregivers find new ways to engagewith loved ones who have Alzheimer’s or other types of dementia. Suggestions, ideas, and case examples are presented throughout the book. The book includes chapters on how to have positive visits, how to engage with loved ones, as well as information on how to cope with difficult situations and end of life issues. Available locally from Tall Tales Books.

Other Books

Dementia from the Inside: A Doctor’s Personal Journey of Hope
Dr. Jennifer Bute was a highly qualified senior doctor in a large clinical practice, whose patients included those with dementia. Then she began to notice symptoms in herself. She was finally given a diagnosis of Young Onset Dementia in 2009. Jennifer believes that her dementia is an opportunity as well as a challenge. When she resigned as a General Practitioner, she resolved to explore what could be done to slow the progress of dementia, and to help people living with it. Inspired by the work of neuroscientist Professor Kawashima that showed significant cognitive recovery in patients with dementia, she adopted the principles of his approach and has produced materials for the ‘Japanese Memory Groups’ that she runs in the dementia inclusive village where she now lives.

The Long Hello: Memory, My Mother, and Me
Since Cathie Borrie delivered her keynote performance at the World Alzheimer’s Day event sponsored by the Community and Access Programs of the Museum of Modern Art, her self-published manuscript has won rapturous praise from noted writers and Alzheimer’s experts alike, from Maya Angelou, Lisa Genova, and Molly Peacock to Dr. Bill Thomas, Jed A. Levine of the Alzheimer’s Association, NYC, and Meryl Comer of the Geoffrey Beene Foundation Alzheimer’s Initiative. Now it is available to the general public for the first time in a trade edition.

You Might be a Caregiver if: You Give yourself to Others then Wonder what Happened to YOU!
Caregivers, perhaps the strongest of personality types, derive much of their personal satisfaction through pleasing Others. As a result, they often lose perspective on how to please themselves! This book will help these amazing individuals to learn about themselves through increased Awareness and Acceptance of who and what they are; and more importantly why they do what they do!

The Lewy Body Soldier
They do say the hardest line to write in a book is the first, in my case it will be the last, as eight years ago i was told i had the Alzheimer’s Type of dementia, only to be told, four years later i had been misdiagnosed, and it wasnt Alzheimer’s, But the Lewy Bodys type dermentia, please read to see WHAT HAPPENED NEXT

Creating Moments of Joy – Jolene Brackey
Jolene Brackey has a vision. A vision that will soon look beyond the challenges of Alzheimer’s disease and focus more of our energy on creating moments of joy. When a person has short-term memory loss, her life is made up of moments. But if you think about it, our memory is made up of moments, too. Available locally from Tall Tales Books.

Learning to Speak Alzheimer’s – Joanne Koenig Coste
More than four million Americans suffer from Alzheimer’s, and as many as twenty million have close relatives or friends with the disease. Revolutionizing the way we perceive and live with Alzheimer’s, Joanne Koenig Coste offers a practical approach to the emotional well-being of both patients and caregivers that emphasizes relating to patients in their own reality. Available locally from Tall Tales Books.

Relentless Goodbye – Ginnie Horst Burkholder
Ginnie Horst Burkholder shares from the heart about caring for a spouse who is slowly slipping away to Lewy body dementia (LBD). Burkholder’s memoir reveals how she handles the constant challenges through humor, love, commitment, and faith. At the same time, she does not gloss over the loss, pain, and loneliness on this emotional roller coaster ride that invaded her marriage and family following her husband’s diagnosis. Available locally from Tall Tales Books.

The Validation Breakthrough – Naomi Feil and Vicki de Klerk-Rubin
Validation is a practical way of communicating with and managing problem behavior in older adults with Alzheimer’s-type dementia. It helps reduce stress, enhance dignity, and increase happiness. Since its inception in 1989, Validation has helped thousands of professional and family caregivers improve their relationships with residents and loved ones with dementia. Caregivers who use these techniques validate older adults’ expressed feelings, rather than focusing on disorientation and confusion.

When Caring Takes Courage: Alzheimer’s/Dementia: At A Glance Guide for Family Caregivers – Mara Botonis
Top Tips for Common Care Challenges… From helping your loved one live well with Alzheimer’s/dementia to the secrets of capable caregiving, these easy to implement ideas give you a head start on creating the best possible day. When it comes to Alzheimer’s and dementia care, the only thing predictable about the experience is that it’s unpredictable. The more ideas and approaches you have, the better your chances are you’ll find something that works well for you. Available locally from Tall Tales Books.

Alzheimer’s From The Inside Out – Richard Taylor
Offers a glimpse into the world of individuals living with Alzheimer’s disease. The author, who was diagnosed at age 58, shares his account of his slow transformation and deterioration. Addresses complexity and emotions surrounding issues such as the loss of independence, unwanted personality shifts, struggle to communicate, and more. Available locally from Tall Tales Books.

Thanks to Caring Together in Hope for recommending many of the books on our resource page!

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